While we are all in the good fight together against diabetes, type 1 and type 2 are always faced with many misconceptions. I recently asked those in the diabetes online community (DOC) what is one thing that they wished more people knew and understood about type 1 diabetes.
Maggi McMains Breed: That it’s not the same as type 2!! That diet and exercise are not the “easy fix” that everyone has been taught. That despite how healthy I eat I still cannot control my numbers.
Jill Mroz Hall: It’s not an easy as it looks, it’s not as simple as taking a shot and it is not the same as type 2.
Tarah Durham: That it’s not “cured” by diet and exercise, and that it’s not as simple as “just take some insulin” when your sugars are screwed up.
John Siborgs: That insulin doesn’t cure us from all problems.
Carrie A. Reed: It’s only manageable, not curable. People always tell me to exercise and eat right and I won’t need insulin anymore.
Bria Busuttil: That it’s a pain.
Carla Mosher: That is not caused by eating bad or living a lazy lifestyle.
Kat Baustert: How much of a joke it isn’t. I can literally lose body parts by messing up in treating.
Tawnya Edwards: Our low blood sugar unawareness is not our fault. We do not like it one single bit, Be kind to us!
Trevor Maverick Nieson: Even if I ate less sugar as a kid I couldn’t have prevented it.
Brittney Seiler: I wish they knew I didn’t do this to myself. Stop making me feel guilty…
Pebbles Audrey Smith: Type 1: autoimmune, Type 2: metabolic #theybothsuck
Tarah Durham: Also that pyramid scheme products won’t cure us.
Carla Mosher: I hate that so much! Not diabetes related, but I have a 4-inch scar on my face from having skin cancer removed. I can’t go to boutiques without everyone approaching me because they have a magical product that will help the scar go away. It makes me crazy. I couldn’t imagine how much worse it would be if people could see the diabetes.
Tarah Durham: It should be illegal. You can’t tell a person that a product will cure them. I get messages all the time because I’m overweight, too, and I’m like “why don’t you just say “hey fatty wanna lose some weight” because that’s exactly how it feels.
Rebecca Warnick: It can make you tired!! All the ups and downs at times and the work put in to make your numbers semi-normal can be exhausting!
Sylvia Haines: That type 1 is a serious disease that needs to be watched over 24/ 7.
Brandy Ellayne: That no 2 days are the same and certain preventable factors can and should be avoided.
Victoria Jenkins: That I am just as strong maybe even stronger than everyone else. I’m not made of glass and I refuse to let diabetes be my main focus point in my life.
Tammy Savona: That the solution to feeling better after a severe high or low is time. Time to rest and let our bodies get back on track. They always seem to think you should feel better NOW.
Alexys Taylor: That insulin is not optional and that type two is different.
Leah McIntosh: That they didn’t give it to themselves and we didn’t bottle feed them Pepsi.
Jenn Morris: That T2D is completely different. Diet and exercise may help a T2, but a T1 cannot control numbers without insulin…. Even insulin isn’t a guarantee.
Cait Lynn Roberts: I wish people knew the mental toll it can take on you. How literally every minute of every day it’s in the back and the front of your mind. You don’t get any days off from it.
Mandy MacKinnon: How hard people work to manage their diabetes and that they (type 1) fight for their lives on a daily basis.
Brit Nell: How expensive it can be to not die! Also, that it’s autoimmune.
Becky James: That nothing is definite. There is not a magic number that we can use to calculate our insulin doses that will always come out right because of other factors affecting our bodies. It is really a guessing game, and we are doing good if it comes out right even part of the time.
Serene Johnson: That you can be fat and STILL BE TYPE 1. No amount of weight loss will change that, nor did my weight gain cause it. And it does not affect my ability to be a good nurse (currently going through this at work😠😠😠) – but it does give me a unique insight into what my diabetic patients go through when they’re in hospital.
Dee Holmes: That the highs and lows cause mood swings we can’t control and the depression and anxiety and tiredness is a daily struggle.
Donna Siegel: How erratic it can be! Nothing can cause highs and lows, everything can cause highs and lows.
Mindy Quinby Ican: Still eat that piece of cheesecake. I just got to dare someone to race me to the middle now
Renee Walls: That sugar free does not mean my T1d can eat an endless amount, my aunt always buys my daughter sugar free stuff, and tells her she can eat as much as she wants! but it still has carbs.
P Susan Willis Addington: How truly crappy highs and lows can make my daughter feel.
Kim Wyatt McAnnally: Type 1 is not the same as type 2. If you are type 2 and start insulin, you are not now type 1. (had a nurse tell me that. Sigh)
Mary Martin: There is no set rule for who is Type 1 we come in all sizes, shapes and yes even age.
Connie Prevost: People don’t understand that everything affects your blood sugar just not the amount of food you eat or insulin you take. Stress, lack of sleep, just to name a few.
Terra Durnen: That when we make plans to do something, we still have to stick to a schedule.
Tami Grgas: That it is different for everyone, but the same….
Sabrina Lynn Foulke: Mood swings. how tired we get. how we fight every single day just to stay alive. forcing ourselves to eat when we don’t wanna. hhhhmmm…pretty much everything!
Rachel Anszelowicz: I can eat whatever I want.
Connie Prevost: Wish I could say that eat whatever I love lemon and I find if I eat anything with it, raises my bs so high and fast I just stay away now
Amy Headrick: That’s it’s not a one size fits all disease. That every single person that has it is affected by it differently. I especially wish that for endos. Some OF them think that because 3 of their 5 patients have easily managed diabetes that I’m doing something wrong to cause mine to be brittle.
Bridget Linne: That I can eat anything a non-diabetic can… 😀
P Susan Willis Addington: Pumps don’t magically make it easy.
Nicole Windley: I don’t have this because I’m fat.
Victoria Torres: The mood swings, the deathly feelings of low and high blood sugar.
Holly Marie Voit: Definitely the stress and ups and downs it can cause every single day of the rest of your life. I think a lot of people think it’s so easy when in reality it is extremely hard.
Mary Reagan: Don’t pity me; I can live really well. Insulin makes it possible. And yes, you could give yourself an insulin shot if you had to…. I had to learn….
Sonja Jo Fatherly-Boston: That it is a 24/7/365 disease and it can change how I am feeling quickly.
Roberta Karp: The emotional toll it takes.
Jeanna Waller Long: Just because I do everything I am supposed to do doesn’t mean that I won’t be high or low.
Chassidy Chatham Hester: That high sugar can occur even without the benefit of eating anything let alone sweets. And that just because I have a low doesn’t mean I’m not taking care of myself! Because I have such tight control on my sugar I tend to go low.
Stephanie Ward: That I can eat a piece of candy and not die.
Ashley Nicole Phillips: You can’t get it from eating a lot of sugar.
Monica Layer: That I have to have my meds and meals at a certain or I can go low.
Tanya Walter Hitzel: Many things but if I had to say one thing. I did not get diabetes from eating too much sugar!!!
Kristen Clifford: That it’s not the same as Type 2.
Natasha Raatz: I hate when people in public think I’m injecting illegal drugs.
Kimberly A. Malone: Just because I ate something a few minutes ago doesn’t mean that my blood sugar won’t bottom out five minutes after that meal.
Lita Jones: The mood swings.
Alison Van Deusen: That every single thing or decision can affect my sugars. Exercise, carbs (carb counting), heat, trying to diet, changes in schedules, sleep, the list goes on and on!
Connie Prevost: This morning had a shower and also had to change site and of course once done that my sugar was at 16.9 was disconnected a total of 20 min.
Catherine Stearns Newton: Yep, I can eat a candy bar if I choose, it requires insulin. But so. Be it.
Sharron Korensek: How it effects your moods.
Yvette Rios: The math involved every min when hungry.
John Theissler: It is an autoimmune disease. I didn’t eat my way into this hell.